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Women with Alopecia Totalis

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Johan View Drop Down
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    Posted: November 02 2002 at 12:48am
I have been reviewing the posts over the last couple of years, and a number of women have written in who have alopecia totalis or alopecia universalis. Some of these women seem well adjusted and even happy that they are bald women, but many others seem to feel like it is a problem, or are somewhat embarrassed or ashamed of their condition. My own belief, and the belief, I assure you , of many men, is that bald women are exceptionally beautiful, you can really see a woman`s feminine features when she is without hair, and that a smooth bald woman is sensual and sexy!
My own wife Monique wears her hair ultra-short and sometimes shaves her head smooth and bald, to please herself because she likes the feel and look of a bald head, but also to please me, because she knows how much I love her bald! When my wife shaves her head smooth and bald and dolls herself up with makeup, a pair of long dangle earrings and a beautiful dress, she is so sexy! So smooth and feminine!
And with all of the lady fashion models, lady rock singers and actresses nowadays wearing either very short hair or shaving their heads bald, an increasing number of people are finding the bald look on women an extraordinarily attractive style!
I would love to learn more about what bald women with alopecia totalis think about being a bald woman in the modern world and some of their experiences!
Lovely bald women, you have many that are not only supportive of you but find you adorable! And remember, alopecia is not a disease, you are not "suffering" from alopecia, but it is a style, and a fashionable style at that! Would love to hear from you!
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sandy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sandy Quote  Post ReplyReply Direct Link To This Post Posted: November 02 2002 at 1:48pm
Hi Johan, you already know me but I thought I`d reply just to start the thread off. I think it`s great that Monique shaves her head bald and is happy about it, the only difference of course is she has a choice. She`s lucky too to be with a man who appreciates the beauty of a bald woman, I`ve yet to find some such person who isn`t miles away and on the other end of a computer.
I`ve detailed some of my experiences on my recently updated home page:

http://www.geocities.com/scooper632000/baldsandyspage.html

As regards sharing experiences, there`s a nice bald lady called Sharon Aiello who runs a Yahoo group called SenShar. She`s happy to talk to anyone about alopecia, in fact a bit too happy, members who don`t chat to her every day get thrown out of the group which is how I left.
I`ve also spoken to a guy called Nathan who runs the Alopecia Boy network, which is very interesting.
I was surprised too to find so many lovely bald ladies on this, a hair site of all things! Thank you, Bald Heidi, Bald Jennifer, Bald Linda and Bald Carol for your continued correspondence.
As for me, well, I`ve got as far as publishing a small fuzzy pic of me on the net (on my page). I can assure you it is the only one of me bald in existence on the net or anywhere!
You are right about bald heads being attractive, it`s just that sometimes I`d like a change, to be able to go into a hairdressers and have a trim, or have it dyed. I suppose I could always paint my head. There was a programme on TV a few years ago called The Clothes Show where they showed girls who had done just that. One had painted brown hair on with a jagged fringe, another a picture of a target, and I think another had had her head tattooed. Maybe that`s the way to go for us bald ladies, but for the moment at least I`ll continue to slap my blonde wig on whenever anyone comes into view. But this will change, I promise myself.
BaldSandra
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 02 2002 at 4:09pm
Beautiful Sandy,
I saw your picture on your website, you are right, the picture is a little bit fuzzy and your head is turned so it is hard to see your face. However from what I can tell from the picture, you have great features, and are a feminine looking woman, my guess is you look sensational bald!
Also Sandy, who needs hair to change your look! My wife changes her look with different wigs and headscarves! And there are many ways to wear the headscarves! Also the bald look, or for that matter a look with a sexy headscarf, looks great with earrings, especially long dangle earrings or hoops! You can change your look whenever you want with wigs, scarves, jewelry, earrings, etc., and blonde wigs are attractive, but since you were a brunette, brunette wigs are a possibility,( but that is my bias coming through, I like brunettes).
As far as head tattoing, I have seen on the net, and a few times in person, women with head tattoos. I knew a woman who was actually an astrolger and palm reader who had alopecia totalis, who had a large blue star tattooed on the side of her head, and she went by the name of Blue Star. I haven`t seen her in years, and I tried to find her a couple of years ago just to talk with her, but she must have moved to a different city, I can`t find her anywhere, and I never knew what her real name is, so I may not meet her again, but she was an intelligent and attractive lady,
Head tattooing is tricky though, if you were to do such a thing it had better be a very attractive and classy tattoo, not something silly or fadish. Just like tattoos on other parts of the body, it has to be attractive. I am not a huge fan of tattoos, I don`t have any neither does my wife, one of my teenage daughters has an attractive ankle tattoo. I have seen people with attractive tattoos, but I have seen many others with tattoos that really don`t look so good, you know, trashy looking.
Because I have always had such an interest in women with very short hair or bald women, and because I have traveled alot , worked and played music in rock bands, and also work with the public in the cab bussiness and meet many different types of people, I have had an oppurtunity to meet quite a few bald women, some with alopecia, others who shave their heads. And almost always, with very few exceptions, these women were interesting, intelligent, and usually were somewhat artistic and had a sense of fashion. Sometime I will post a few of the stories I have to tell about some of the bald women I have met, including a couple of bald women who are regular customers of my cab service.
Excluding women cancer patients going through chemo, I read that there is an estimated 500,000 bald women in the United States who either have alopecia totalis or who shave their heads. I don`t think anyone knows for sure how many bald women there are, but I believe there is that many, considering that I have personally met at least 50 bald women in my life, and have seen many more than that, and of course that is not even including the ones I didn`t know were bald because they wore a wig!
Anyway, thanks for writing lovely Sandra, you are a doll, and I hope more bald ladies write in!!!!!
Love,
Johan
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Bald Jennifer View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bald Jennifer Quote  Post ReplyReply Direct Link To This Post Posted: November 03 2002 at 1:24pm
HI JOHAN AND SANDY,
It`s me again Bald Jennifer! As you know I have been bald with alopecia totalis most of my life, and not only have I adjusted to being bald, I LOVE IT, AND MY HUSBAND LOVES ME BALD!!!
To every girl and woman who is bald with alopecia, there are plenty of guys that love bald women.Men like Johan and my husband are far more numerous than some people think.
And when my husband and I go out and I make myself look stunning with beautiful earrings, carefully applied makeup and my best dress and heels, believe me I GET COMPLIMENTS!!! Sure you get some odd looks but the positive reactions and compliments more than make up for it!!!!!
BALD WOMEN YOU ARE BEAUTIFUL AND CAN DO WHATEVER YOU NEED TO DO IN LIFE!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Carol View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol Quote  Post ReplyReply Direct Link To This Post Posted: November 04 2002 at 7:32am
Hi everyone,
I am glad Johan that you appreciate us bald ladies so much.
when i lost my hair initially in high school it was a big shock, but since then i have adjusted well to having alopecia universalis. I am married with a small boy and girl and i do everything that other women do; i work, figure skate, play tennis, read fashion magazines, go shopping, etc. alopecia women are no different than other women, we are just doing it bald!
Good luck bald ladies!
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 05 2002 at 10:24am
Thanks Sandy, Bald Jennifer and Carol for writing in, you beautiful, bald, sexy alopecia ladies are the delightful!!!!!
Love to here from more beautiful women with alopecia totalis!!!!!
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Bald Jennifer View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bald Jennifer Quote  Post ReplyReply Direct Link To This Post Posted: November 06 2002 at 6:50pm
Johan,
Since it now appears that your wife Monique is going to have her head lasered permanently bald, she is going to have to write in to this thread as a new"voluntery Alopecia Totalis" woman! I am so happy for both of you knowing how much Monique wants to do this and how you have so elequently expressed your love for your wife and for bald women! I sincerely hope she decides to go through with it Johan, she sounded so excited and happy today writing on Sandy`s thread when she learned there was a safe way that she could have her hair removed by an expert woman!
Best wishes,
Bald Jennifer
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Carol View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol Quote  Post ReplyReply Direct Link To This Post Posted: November 08 2002 at 2:21pm
Johan darling!

I wrote in on your ultra-short hair thread that I was going to get my nostril pierced like your wife has, well i did it today, i love it! i had my left nostril pierced and am wearing a little stainless steel stud. in three weeks i can take it out and wear any type of nose stud or nose ring i want! it really does compliment my bald head, and i also had my ears pierced again, so i now have two earrings in each ear and a pierced nostril!!!!!!

i am going shopping this weekend too with one of my girlfriends, looking for a new dress, something slinky and sexy!
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 08 2002 at 6:29pm
Sounds wonderful Carol, very sexy! How does your husband like your look!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol Quote  Post ReplyReply Direct Link To This Post Posted: November 08 2002 at 7:20pm
Johan,
my husband loves my nosestud and my extra earrings, so do the people at work! i wear a wig at work,(blonde because i was a blonde and have blue eyes), but even with hair (te he), the jewelry looks good, just better bald!(as i know you would agree)!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 09 2002 at 1:05am
Yes Carol I would agree,your alopecia totalis is an advantage with jewelry! What looks good is a small gem in the nostril(especially a small diamond or lighter colored jewel), and long dangle earrings. Both my wife and myself love earrings, we both wear 14ct gold alot of course, but also turquiose and silver are nice. Long dangles or hoops, especially slender earrings, are both our preferences, although we both wear gold and diamond studs!
Before my wife got pregnant we would sometimes go out both of us dressed in black. I would tie my long hair back in a ponytail with a black silk scarf, and would wear black jeans, a black sports coat, black boots and a lighter colored shirt, like powder blue. And I would wear long dangle 14ct gold earrings at least two inches long. My wife would shave her head before we went out and would either go bald or wear a black turban or headscarf and a little black dress with long 14ct gold dangle earrings similar to mine and a small diamond nosestud in her left nostril.And of course she wore nylons and black high heels! We would go out to a fancy dinner club,a s**** nightclub, an art gallery,or a symphony concert. We didn`t do this that often but it was fun to dress up in our best clothes with our unusual, and I believe stylish look. And my wife is so ultra- feminine, petite and pretty, I assure you she looked very very good!
Have fun with your new jewelry beautiful Carol!
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 09 2002 at 1:09am
Why was the word s****, rhymes with sank, when refering to the nightclub, deleted like a curse word?
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 09 2002 at 2:46am
Lovely Carol,
Carol I have never asked you, I know you wear a wig at work but do you go out much bald! You seem very enthused and fired up about wearing your earrings and new nose stud with your bald look! Do you go out with your husband or girlfriends bald, or is it more a private thing with you, at home with your husband. Or at private small gatherings of people.
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Johan View Drop Down
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Hello again everyone, this is Monique writing to you again.

Bald Jennifer you are right to state that I will soon be joining you as a permanently bald woman, and this idea is not new to me. I first thought of it as a teenage girl, visualising myself in the role of Lt.Illia, played by Persis Khambatta in the first Star Trek movie, a woman who was sensous and spirituality evolved, of a bald species of people.
Later after I first had my head shaved by my very close friend Cindy, the feelings became even stronger!
Last summer I asked, and was allowed,to attend two meetings of alopecia women at the University of Minnesota. Many of these women had alopecia totalis, and everyone wore wigs, including me, at the meeting. I was so impressed with these beautiful bald women as they expressed their pain and suffering at being permanently bald, and also their love, joy, and courage! I felt their suffering and felt their love, and I wanted so much to be one of them, I wanted to hug them and hold them close to me, I wanted to be their loving sister, I wanted to feel everything they were feeling! Their humility so impressed me! It was then that I really decided I would have to find a way to have my head permanetly bald, as they were. I didn`t need hair and I didn`t want it.

If I was a Buddhist nun I might feel different. Every day the Buddhist nuns rise early meditate and pray and ritually shave each others heads. If I had my head shaved every morning by a Buddhist sister who loved me spiritually and gently shaved my head, and then I would gently shave her head, as an act of devotion, sacrifice, submissiveness and humility, I might not feel the need to have my hair permanently removed. I would be in a state of spiritual sacrifice, serenity and bliss, dedicated only to serving God and others, but I am married, with two step daughters and pregnant with a child, so I cannot be a nun. The permanently bald alopecia totalis women are to be my sisters, I will share their pain and joy!

But since I have been pregnant I have been wearing my Buddhist nuns robes that I bought in California and some of the robes here in Minnesota in the southeast Asian district. The Buddhist nuns robes are loose fitting and perfect maternity clothes, I have been wearing the robes around the house, and more recently outside as well, as I become bigger and more pregnant. I have some beautiful robes in saffron, orange and pink! I still love to wear my earrings and nose stud, and some Buddhist nuns do wear earrings or noserings, and I wear a little eye makeup. When I have my head hair removed by laser after my baby is born, I am also going to get permanent makeup, therefore never having to fuss with my hair or my makeup again, but rather concentrate on serving my husband, taking care of my baby, and reading, praying, meditating, and listening to music and doing a little artwork, in other words doing the things that are important to me and my family.
I also plan on attending alopecia totalis meetings with my bald sisters and doing some volunteer work at my Christian church and at a local Buddhist temple.

The woman I admire most who is living today is a Buddhist nun named Cheng Yen. She lives in the far east in Taiwan. She is 65 years old(although she looks 40, not because she has had an easy life, she has had a hard life of sacrifice and service, but because she has so much inner peace, love and serenity, eats healthy, and is just very naturally beautiful).
Cheng Yen became a Buddhist nun at age 23, had her head shaved and lived a life of poverty, celibacy, humility and sacrifice. In the early 1960s when Cheng Yen first became a nun, there was still a great deal of poverty, serious poverty in Taiwan, it was not as developed as it is today. Cheng Yen not only prayed, fasted and meditated on the poor and suffering, she went out and spent years convincing wealthy people and business people in Taiwan to donate money to a Buddhist charity she and some of the other nuns started. These beautiful sisters lead by Cheng Yen raised enough money not only for shelters and soap and rice kitchens, but also built a Buddhist elementary school and high school, a Buddhist college, a Buddhist nurse training school, and a hospital that served mainly the poor. The schools were also mainly for the poor! She then became a teacher and lecturer on the virtues of helping the underprivledged as well as the importance of meditation, prayer and humility. She wears only a Buddhist robe, no eye makeup, has her head shaved smooth and she is still one of the most beautiful people, inside and outside, that you have ever seen, and so are all of the nuns in her organization, they range in age from teenage girls to old women, and ages in between, and they are beautiful, serving each other, the monks and the greater society. Yet they are never arrogant always giving credit to God, knowing they must keep their feminine modesty, humility and submissiveness!

These women are my role models. I can serve my husband, my family and my community with their spirit, and even when I am giving myself to my husband physically it is love for him, and I love my husband so much, and also an act of devotion.

Yes you Jennifer, and the other beautiful women who have written in, I am one of you, and I am looking forward to being an alopecia totalis woman!

All of my love, so much love to you ladies! May God bless you, and peace and serenity be with you women!
Sincerely;

Monique



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Carol View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol Quote  Post ReplyReply Direct Link To This Post Posted: November 09 2002 at 5:24pm
It is fascinating what you write Monique, the buddhist women in taiwan really are something, they really are role models for all of us! you have expressed monique that you have always been shy, have you always been this religious! and i know you are pregnant now, but did you every smoke or drink or whatever, you just seem so pure, and i don`t mean that in a bad way, you are just so devoted to God and to Johan, which is great, admirable really, it is just unusual to meet people so devoted!

Best wishes Monique!
Love,
Carol
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 09 2002 at 6:30pm
Carol,

This is Monique again.
I am so sorry I gave you the impression I am always serious and religious, no I am not always religious, and I used to smoke, I gave it up, I never smoked that much, and I do have a drink occaisionally, but I don`t drink much or often. I am so small in size that two drinks practically get me drunk so maybe I will have only one drink or one glass of wine. I am not drinking now however, since I am pregnant. After my pregnancy I will have a drink once in a while. Neither Johan or myself are huge drinkers though.

No I like to have fun Carol. I love fashion, I go out and drink coffee or shop with my girlfriends, I sometimes watch movies with Johan, I sometimes even watch sports with him. Soccer is sort of fun to watch,ice hockey is a good sport but it is a little rough! American football is too rough and doesn`t interest me, neither does baseball or basketball. My favorite sport is ladies figure skating(of course). Johan`s daughters and neices like figure skating too, and one of Johan`s neices is an excellent figure skater(she is only 10, and skates beautifully!).
And I love romantic movies, Johan likes crime dramas, but we usually can find some movies we both like and can watch together.

So I am not entirely religious or spiritual all the time. And I hope I have a sense of humour and can have a little fun too!

I am serious about what I discussed however, my desire to lead, basically, but not entirely,a religious life, is very important to me, it is a craving deep inside of me, it is part of who I am. And I also have a very strong desire to be permanently bald, for the sexual/sensual reasons as well as the spiritual/religious reasons I have described. And the Buddhist nuns are my role models, even though I am Christian by religion, I am Buddhist by philosophy and as a lifestyle thing as a bald woman devoted to submissiveness and humility!

And I love my husband and want to be a good wife and mother. That is the best I can explain myself Carol!
Thanks again for writing
Love,

Monique
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol . Quote  Post ReplyReply Direct Link To This Post Posted: November 10 2002 at 6:56pm
I understand monique, you obviously have many interests as well as being a religious and spiritual person. All the best Monique!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote linda Quote  Post ReplyReply Direct Link To This Post Posted: November 11 2002 at 1:32pm
It is nice of you to start this thread Johan for us permanently bald and beautiful types! Men like you Johan and my husband are wonderful, beautiful men, I am so glad you love and appreciate alopecia totalis women, we sure love and appreciate you!

My love to all of you ladies and gentlemen!!!!!!!!
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Johan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Johan Quote  Post ReplyReply Direct Link To This Post Posted: November 11 2002 at 7:40pm
Thanks for writing lovely Linda, always appreciated!
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