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O/T Please pray for Metalgirl

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Topic: O/T Please pray for Metalgirl
Posted By: CyberMane
Subject: O/T Please pray for Metalgirl
Date Posted: October 24 2005 at 11:01pm

Everybody, this is very serious.  Our friend, Metalgirl, is not feeling well lately.  She is undergoing some tests and doctors say she has symptoms of Multiple Sclerosis {MS}.

I have met her over the summer and she is a beautiful and caring person.  She takes her job seriously and enjoys caring for her animals.  She has contributed so much to help professionals and DIY alike in this forum.  We need her.  Send her your wishes and prayers.  She needs our help more than ever.

Please if you know someone who has MS, any advice would be greatly appreciated.

Lisa, stay strong, our prayers are with you!

Love, Charlene   



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http://www.cybermane.com - CyberMane.com



Replies:
Posted By: MERGUTHRIE
Date Posted: November 02 2005 at 12:24am
i am hoping the best for her

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i love plastikhaar


Posted By: Cali-Kristin
Date Posted: November 02 2005 at 1:08am
My prayers are with her.

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http://www.YourHairShop.com - www.YourHairShop.com


Posted By: metalgirl
Date Posted: November 02 2005 at 1:26am

Thanks guys.  I believe in the power of prayer!

My first episode of numbness seems to be subsiding for now, so that's good.

My next fight is figuring out how to pay for medication when my insurance policy won't cover brand name drugs.  There are 4 drugs for MS that will slow down the progression, all four are unfortunately injectibles that cost $1000-1400 PER MONTH!

Not sure what to do about that and I'm quite stressed out over it.  Our healthcare system sucks.



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Posted By: Amanda8Beechwoo
Date Posted: November 02 2005 at 3:55am
I can't believe that expense, surely they can't expect you to pay for that x

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[URL=http://www.hairextensionsbyamanda.co.uk]www.hairextensionsbyamanda.co.uk[/URL]


Posted By: Chris H.
Date Posted: November 02 2005 at 8:12am
I had a close friend who thought she had that and went on to have an mri done (she had numbness all the way her arm to her fingertips), but thankfully, it all turned out to be nothing. I hope the same for you.


Posted By: CyberMane
Date Posted: November 02 2005 at 11:32am
Originally posted by metalgirl metalgirl wrote:


My next fight is figuring out how to pay for medication when my
insurance policy won't cover brand name drugs.  There are 4 drugs
for MS that will slow down the progression, all four are unfortunately
injectibles that cost $1000-1400 PER MONTH!


Not sure what to do about that and I'm quite stressed out over it. 
Our healthcare system sucks.



OMG! That's a lot Lisa, get another insurance policy. Stay
strong!

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http://www.cybermane.com - CyberMane.com


Posted By: metalgirl
Date Posted: November 02 2005 at 11:33am

Thanks for the kind words Chris, but unfortunately I had the MRI that showed some sites with distinct scars (lessions/ plaques) on the nerve cells in my brain. 

I'm not sure how many sites were discovered, but it was more than one area. 

People with MS have episodes where more scars develop on the brain, thus the result is further deterioration and damage.  For people who lose to ability to move their arms and/ or  legs, the nerves that control those muscle movements just become too damaged with those scares, and that's why they end up in wheelchairs or even worse, paralyzed.

MS sucks.  Even on your days when you feel good, MS people are in a high state of constant anxiety, wondering when the next episode will occur and what damage it will do to them.  This is one of the most emotionally  (and physically) cruel diseases.  Most MS people say it's the unpredicability that makes this whole thing 100 times worse.  At least if anyone knew how bad (or not) they would get, than they could prepare for it.  MS people never know when another attack will occur, so it makes it so hard to plan thier lives.

I'm trying soooo hard to just live in the moment, but it's really hard when you have some indication that your future may bring physical disability that will force your whole life to change.  The MS people to whom I have been talking are the most courageous , strong and supportive group of people I have ever met!



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Posted By: metalgirl
Date Posted: November 02 2005 at 11:35am

Hi Char,

I can't get another insurance policy, I have tried.  No insurance company will touch me now that I have this 'pre-existing' condition.  Insurance companies suck, they don't care about you.



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Posted By: Longhairdreams
Date Posted: November 02 2005 at 11:51am

I'm so sorry to hear you have Ms.I cant imagine how scary that must be.

And you couldnt be more right about insurance companies.When I was little my parents had an HMO(scammers).And I had a very serious thyroid condition.It caused me to be sick all the time until just a couple of years ago.The doctor was taking payoffs from the HMO to keep quiet.You ask why would they do that.Cause they knew it was cheaper to just keep telling me It was a virus and would pass.All that suffering could have been prevented if they hadnt done that.I'm still very angry about the whole thing too.Because of them not telling me sooner.I ended up with preeclampsia bad enough to make me be in the hospital for over 2 months.And in turn causing my son to be born only 3 pounds.So I completely understand.Its all about the almighty dollar sadly enough. 



Posted By: CyberMane
Date Posted: November 02 2005 at 11:55am
That really sucks!!!

Lisa, if you need anything from me, don't ever be afraid to ask.
There just has to be something out there that can help you get the
meds.

Take care!

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http://www.cybermane.com - CyberMane.com


Posted By: Playful_Tigger
Date Posted: November 02 2005 at 5:02pm

I was watching a medical science show about a week ago quite a few people are using bee stings to reverse the effects of MS. It might be something to check into as doctors are starting to study this.

My prayers are with you !



Posted By: marie87
Date Posted: November 02 2005 at 5:14pm
I saw that quite some time ago (bees). I'm buying that book this week about natural cures the doc's don't want you to know about. Looks like an interesting read. Your in my prayers Lisa.


Posted By: metalgirl
Date Posted: November 02 2005 at 9:31pm
I love you guys, you're great!

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http://www.MetamorphosisHairDesign.com - http://www.MetamorphosisHairDesign.com


Posted By: Kimbearly
Date Posted: November 02 2005 at 10:22pm
((((((hugs Metal Girl)))))))  I have not been on the boards in a while and I was sad to read about your condition.  I wish I had millions that I could give you but just know prayers will be said for you from me.  I did a google search and from what I understand in the UK  - MS drugs are fully paid for.  Here is the article and if it is true maybe a move there might be the way to go.

www.mult-sclerosis.org/news/Feb2002/UKMSTrustOnMSDrugDeal. html

Edit:  Trying to get this link to work for you :O)
***For some reason the site keeps on putting a space between deal and html.  When you cut and paste take the space out and you will be directed to the site.


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Posted By: TanglesRC
Date Posted: November 02 2005 at 10:34pm

how about every morning when every one is waking up- we all say a prayer for Lisa-

there is a scripture that says- when two or more are joined in prayer... God is there.

what ever time you awake, while your drinking your morning coffee or whatever, lets ask god to heal lisa and work out his will for her life.

We love you Lisa

((((((((((((((((((((((((((LISA)))))))))))))))))))))))))))))) )))))))))))))



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Bringing beauty, one head at a time...


Posted By: Syren123
Date Posted: November 02 2005 at 10:40pm
Lisa - have you looked into getting your drugs from Canada? They much less expensive than here. You can even order them from the internet and there's nothing the government can do to stop you.

You're a brave girl.


Posted By: Playful_Tigger
Date Posted: November 03 2005 at 10:24am
If you need some help with getting the medication from Canada let me know let me know as I am in Canada.


Posted By: kirstyx1888xmac
Date Posted: November 03 2005 at 11:27am
hy kimberly you are right in the uk all our health services are free


Posted By: Jenny_RR
Date Posted: November 05 2005 at 9:57pm
Hugs & kisses, Metalgirl--you're in my thoughts, too.

And I agree: The U.S. health-care system is a joke (not to mention the big pharma companies that get away with charging these ridiculous prices). It's amazing that we live in the richest country in the world but there's no safety net for people who suffer from health conditions that are totally beyond their control. Sorry to rant, but this makes me really angry. I can't think a better use of our tax dollars than to get people the medical attention and prescriptions they need.

Again, Metalgirl, we're all praying for you. Despite the challenges you're now facing, there's no doubt in my mind that you'll face them with ass-kicking fortitude and grace per usual.

xoxoxoBaldie



Posted By: metalgirl
Date Posted: November 06 2005 at 11:50am

Thanks guys, I need encouragement!

I thought I was doing better, but then last night my whole left side from the foot, up the leg and torso, whole left arm, up the left side of my neck, my left ear and behind my hairline, and the left side of my face is very numb.  My left arm feels like it weighs 100 pounds, it's so heavy to lift it.  And today I have to go to work!

I hate this disease.  I never know when to expect something else to go wrong.  Let's see, what won't work or will be numb when I wake up today.... Sorry, I'm just really depressed.

Keep praying for me!



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Posted By: TanglesRC
Date Posted: November 06 2005 at 2:48pm

Awww lisa

{{{{{{{{{{HUGS}}}}}}}}}}}

i have been praying for you every single morning-

keep your head up. i knowit has to be hard and scary.



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Bringing beauty, one head at a time...


Posted By: Gina E
Date Posted: November 06 2005 at 2:50pm

You most certainly are in my thoughts!

I have a client with MS...she's a wonderful lady and has helped me to understand the disease.

Stay positive! 



Posted By: leia1979
Date Posted: November 07 2005 at 7:47pm
Hey Lisa, my thoughts are with you.

Have you considered looking into any clinical trials?  If you're willing to be sort of a guinea pig, the drugs are covered in trials.  It might be worth looking into.

I'm sure you've read a million things, but if you didn't catch this one, it has resources for lower-priced medicines: http://www.nationalmssociety.org/healthinsurance_resources.asp - http://www.nationalmssociety.org/healthinsurance_resources.a sp




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