O/T Please pray for Metalgirl

Hey Lisa, my thoughts are with you.

Have you considered looking into any clinical trials?  If you're willing to be sort of a guinea pig, the drugs are covered in trials.  It might be worth looking into.

I'm sure you've read a million things, but if you didn't catch this one, it has resources for lower-priced medicines: http://www.nationalmssociety.org/healthinsurance_resources.a sp



Edited by leia1979

Awww lisa

{{{{{{{{{{HUGS}}}}}}}}}}}

i have been praying for you every single morning-

keep your head up. i knowit has to be hard and scary.

Hugs & kisses, Metalgirl--you're in my thoughts, too.

And I agree: The U.S. health-care system is a joke (not to mention the big pharma companies that get away with charging these ridiculous prices). It's amazing that we live in the richest country in the world but there's no safety net for people who suffer from health conditions that are totally beyond their control. Sorry to rant, but this makes me really angry. I can't think a better use of our tax dollars than to get people the medical attention and prescriptions they need.

Again, Metalgirl, we're all praying for you. Despite the challenges you're now facing, there's no doubt in my mind that you'll face them with ass-kicking fortitude and grace per usual.

xoxoxoBaldie

If you need some help with getting the medication from Canada let me know let me know as I am in Canada.

how about every morning when every one is waking up- we all say a prayer for Lisa-

there is a scripture that says- when two or more are joined in prayer... God is there.

what ever time you awake, while your drinking your morning coffee or whatever, lets ask god to heal lisa and work out his will for her life.

We love you Lisa

((((((((((((((((((((((((((LISA)))))))))))))))))))))))))))))) )))))))))))))

Edited by TanglesRC

I love you guys, you're great!

I was watching a medical science show about a week ago quite a few people are using bee stings to reverse the effects of MS. It might be something to check into as doctors are starting to study this.

My prayers are with you !

I'm so sorry to hear you have Ms.I cant imagine how scary that must be.

And you couldnt be more right about insurance companies.When I was little my parents had an HMO(scammers).And I had a very serious thyroid condition.It caused me to be sick all the time until just a couple of years ago.The doctor was taking payoffs from the HMO to keep quiet.You ask why would they do that.Cause they knew it was cheaper to just keep telling me It was a virus and would pass.All that suffering could have been prevented if they hadnt done that.I'm still very angry about the whole thing too.Because of them not telling me sooner.I ended up with preeclampsia bad enough to make me be in the hospital for over 2 months.And in turn causing my son to be born only 3 pounds.So I completely understand.Its all about the almighty dollar sadly enough. 

Thanks for the kind words Chris, but unfortunately I had the MRI that showed some sites with distinct scars (lessions/ plaques) on the nerve cells in my brain. 

I'm not sure how many sites were discovered, but it was more than one area. 

People with MS have episodes where more scars develop on the brain, thus the result is further deterioration and damage.  For people who lose to ability to move their arms and/ or  legs, the nerves that control those muscle movements just become too damaged with those scares, and that's why they end up in wheelchairs or even worse, paralyzed.

MS sucks.  Even on your days when you feel good, MS people are in a high state of constant anxiety, wondering when the next episode will occur and what damage it will do to them.  This is one of the most emotionally  (and physically) cruel diseases.  Most MS people say it's the unpredicability that makes this whole thing 100 times worse.  At least if anyone knew how bad (or not) they would get, than they could prepare for it.  MS people never know when another attack will occur, so it makes it so hard to plan thier lives.

I'm trying soooo hard to just live in the moment, but it's really hard when you have some indication that your future may bring physical disability that will force your whole life to change.  The MS people to whom I have been talking are the most courageous , strong and supportive group of people I have ever met!

I had a close friend who thought she had that and went on to have an mri done (she had numbness all the way her arm to her fingertips), but thankfully, it all turned out to be nothing. I hope the same for you.