metal girl i am so sorry that must be very upsetting for you. my thoughts and prayers are with u at this difficult time hopefully you will be gettin loads of help and support from family and friends. stay strong and postive.
Shoot That's some crappy thing to deal with, metalgirl. I'm sorry that you have to go through this. I don't know how much confidence you have in your diagnosis, but if there is any hope that more tests may change your outlook, I wish it to you.
Several years ago, I was having issues where I was having anaphylactic reactions almost every time I left the house, I seriously thought I was dying. Turns out I'm allergic to gluten and it's triggered by exercise. Just one of those bizarre new things that seems to be popping up to f*ck with people, but easily enough controlled, once you identify it. I don't know. I just hope something works out for you. You give so much to the board and it's members. We really appreciate you here.
Scotchyroo
Members Profile
Send Private Message
Find Members Posts
Add to Buddy List
Junior Member
Joined: February 12 2005
Status: Offline
Points: 397
Oh no metalgirl, how can such thing happen to such a nice person. I am very upset by the news and I wish you luck and anything you will need to defeat this disease. Please stay strong and be positive, with these days technology, you never know one day there may be a cure.
Oh, Lisa, this must be so hard for you. But please, don't think that
your diagnosis is your fate. My sister has Ehlers-Danlos Syndrome, a
degenerative joint condition, and it's very easy to think of that in
terms of "an endless spiral downwards". But it's not. She has lots of
problems to deal with that make life harder, sure, but she does lots of
things to counteract the effect of her condition- physical therapy,
wears joint braces, exercises, etc (which don't necessarily apply to
MS, I know)- and by doing so, she has a manner in which she has some
control over her health. And she has bad days, but she's also got very
good days; it's not a straight path downwards, but lots of ups and
downs, like everything else in life. If you do have MS, it's not the
end-all and be-all of everything in your life (though I bet it feels
like it right now); it's just one more thing to deal with. Keep your
head up, girl; you're so talented and determined that nothing can stop
you. :)
Lisa, you know you have the love and support of all of us here.
You are a strong and wonderful person, and I hope for good things to
come to you.
Maybe you might consider travelling down this way to UCSF or Stanford
med center. They're both on the leading edge of medicine (my
brother's been to both).
Syren123
Members Profile
Send Private Message
Find Members Posts
Add to Buddy List
Senior Member
Joined: January 25 2005
Location: SoCal
Status: Offline
Points: 1191
Oh Lisa...bless your heart! I hope that today is a better day for you and that the initial shock is wearing off.
I think what Rae said is absolutely right on - this is NOT the beginning of the end by any means! Her sister's condition just added some stumbling blocks to her life, but they are do-able and not unlike any roadblocks and setbacks we all face. These just happen to be tangible. But in no way are they the end of your world.
All the plans you told us you've made - chiropractic care, organic food, meditation, and just being kind to yourself - are fantastic! Not only for your condition, but for your whole being. Dr. Cheryl's post has lots of stuff to start researching also, and thanks for the heads up on the aspartame thing.
Remember I had a brain tumor removed last April which took the sight in my right eye. I was 44 yrs old with no and I mean NO previous health problems of any kind, just like you. But it appeared nonetheless. I have a few residual complications (impared pituitary which affects my thyroid as a result of the radiotherapy I had this year)... plus I have to watch the tumor via MRI every year forever so as not to lose my other eye. And yup, many new obstacles as a result but - definitely cope-able.
I have 2 dear friends with MS and BOTH are nowhere NEAR degenerated. They have 'bouts' periodically but are otherwise in great shape. Severe cases like poor Annette Funicello are RARE.
The folks I know who have MS do what you're going to do: they work with their doctors and treat themselves gently with diet and lifestyle and herbs and stuff. Only one friend - an older lady - has to take drugs periodically, but not constantly. She is fully functional and doing very well. She was diagnosed 35 yrs ago and she's 55.
I do the same with my issues: the doctors tell me what's wrong with me and I treat myself first - detox, yoga, no bad food whatsoever, supplements for my thyroid and I'm taking Cantron to get rid of the tumor (also works on MS). None of this is doctor prescribed. I am on no drugs. I make sure I have hair I love so I don't stress. I don't wig out about not being able to see as well; I just don't drive at night or read in dim light. And my DIY hair days are over - no way I can see well enough to put it in myself. But whatever.
Honey, you can do this. You will be okay. If you want ANYTHING, any info or anything at all, please ask. You're going to be a-ok and live to be a beautiful old rocker chick.
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum
Topic Options
Post Options
Thanks(0)
hopefully you will be gettin loads of help and support from family and friends. stay strong and postive.
reading this, i will be praying for you daily and know if there is anything i can do, please just ask.... OKAY???
That's some crappy thing to deal with, metalgirl. I'm sorry that you have to go through this. I don't know how much confidence you have in your diagnosis, but if there is any hope that more tests may change your outlook, I wish it to you.
