O/T Please pray for Metalgirl

i am hoping the best for her

Thanks guys.  I believe in the power of prayer!

My first episode of numbness seems to be subsiding for now, so that's good.

My next fight is figuring out how to pay for medication when my insurance policy won't cover brand name drugs.  There are 4 drugs for MS that will slow down the progression, all four are unfortunately injectibles that cost $1000-1400 PER MONTH!

Not sure what to do about that and I'm quite stressed out over it.  Our healthcare system sucks.

I had a close friend who thought she had that and went on to have an mri done (she had numbness all the way her arm to her fingertips), but thankfully, it all turned out to be nothing. I hope the same for you.

Thanks for the kind words Chris, but unfortunately I had the MRI that showed some sites with distinct scars (lessions/ plaques) on the nerve cells in my brain. 

I'm not sure how many sites were discovered, but it was more than one area. 

People with MS have episodes where more scars develop on the brain, thus the result is further deterioration and damage.  For people who lose to ability to move their arms and/ or  legs, the nerves that control those muscle movements just become too damaged with those scares, and that's why they end up in wheelchairs or even worse, paralyzed.

MS sucks.  Even on your days when you feel good, MS people are in a high state of constant anxiety, wondering when the next episode will occur and what damage it will do to them.  This is one of the most emotionally  (and physically) cruel diseases.  Most MS people say it's the unpredicability that makes this whole thing 100 times worse.  At least if anyone knew how bad (or not) they would get, than they could prepare for it.  MS people never know when another attack will occur, so it makes it so hard to plan thier lives.

I'm trying soooo hard to just live in the moment, but it's really hard when you have some indication that your future may bring physical disability that will force your whole life to change.  The MS people to whom I have been talking are the most courageous , strong and supportive group of people I have ever met!

I'm so sorry to hear you have Ms.I cant imagine how scary that must be.

And you couldnt be more right about insurance companies.When I was little my parents had an HMO(scammers).And I had a very serious thyroid condition.It caused me to be sick all the time until just a couple of years ago.The doctor was taking payoffs from the HMO to keep quiet.You ask why would they do that.Cause they knew it was cheaper to just keep telling me It was a virus and would pass.All that suffering could have been prevented if they hadnt done that.I'm still very angry about the whole thing too.Because of them not telling me sooner.I ended up with preeclampsia bad enough to make me be in the hospital for over 2 months.And in turn causing my son to be born only 3 pounds.So I completely understand.Its all about the almighty dollar sadly enough. 

I was watching a medical science show about a week ago quite a few people are using bee stings to reverse the effects of MS. It might be something to check into as doctors are starting to study this.

My prayers are with you !

I love you guys, you're great!

how about every morning when every one is waking up- we all say a prayer for Lisa-

there is a scripture that says- when two or more are joined in prayer... God is there.

what ever time you awake, while your drinking your morning coffee or whatever, lets ask god to heal lisa and work out his will for her life.

We love you Lisa

((((((((((((((((((((((((((LISA)))))))))))))))))))))))))))))) )))))))))))))

Edited by TanglesRC

If you need some help with getting the medication from Canada let me know let me know as I am in Canada.

Hugs & kisses, Metalgirl--you're in my thoughts, too.

And I agree: The U.S. health-care system is a joke (not to mention the big pharma companies that get away with charging these ridiculous prices). It's amazing that we live in the richest country in the world but there's no safety net for people who suffer from health conditions that are totally beyond their control. Sorry to rant, but this makes me really angry. I can't think a better use of our tax dollars than to get people the medical attention and prescriptions they need.

Again, Metalgirl, we're all praying for you. Despite the challenges you're now facing, there's no doubt in my mind that you'll face them with ass-kicking fortitude and grace per usual.

xoxoxoBaldie